Staff Members - Benha University
Quality of Life Based Education Program for Mothers of Children Suffering from Congenital Adrenal Hyperplasia
International Journal of Novel Research in Healthcare and Nursing • 2019
Publication Information
Authors
1Basma R. Abdel Sadik, 2Faten S. Mahmoud
1Assist Professor of Pediatric Nursing, Faculty of Nursing, Benha University, Egypt
2Assist Professor of Pediatric Nursing Faculty of Nursing, Benha University, Egypt
Keywords
quality of Life, congenital adrenal hyperplasia, mothers reported practice
Journal
International Journal of Novel Research in Healthcare and Nursing
Publisher
Basma R. Abdel Sadik
Volume
6
Issue
1
Pages
252-264
publication.type
International
Paper Link
Open Link
Supplementary Materials
basemh abdelrahman_Quality of Life Based Education Program-1667.pdf
Abstract
Congenital adrenal hyperplasia (CAH) is a rare disorder characterized by cortisol deficiency with/
without aldosterone deficiency, and androgen excess. The aim of this study was to evaluate the effect of the
educational program on quality of life for mothers of children suffering from congenital adrenal hyperplasia. A
quasi-experimental design was used. This study was carried out at Benha University Hospital, Benha Specialized
Hospital for Children and Health Insurance Hospital affiliated to Ministry of Health. A convenient sample
included all available mother`s (55) of children between the ages of birth and 16 years with congenital adrenal
hyperplasia. Tools of data collection: Three tools were used; Tool I: A structured interviewing questionnaire, Tool
II: Mothers' reported practice sheet, Tool III: Quality of Life Scale. Results was a highly statistically significant
difference observed between the studied mothers total knowledge, quality of life and mothers reported practice
regarding to congenital adrenal hyperplasia at pre and post of the educational program implementation P=
(
without aldosterone deficiency, and androgen excess. The aim of this study was to evaluate the effect of the
educational program on quality of life for mothers of children suffering from congenital adrenal hyperplasia. A
quasi-experimental design was used. This study was carried out at Benha University Hospital, Benha Specialized
Hospital for Children and Health Insurance Hospital affiliated to Ministry of Health. A convenient sample
included all available mother`s (55) of children between the ages of birth and 16 years with congenital adrenal
hyperplasia. Tools of data collection: Three tools were used; Tool I: A structured interviewing questionnaire, Tool
II: Mothers' reported practice sheet, Tool III: Quality of Life Scale. Results was a highly statistically significant
difference observed between the studied mothers total knowledge, quality of life and mothers reported practice
regarding to congenital adrenal hyperplasia at pre and post of the educational program implementation P=
(