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Improve Caregivers' Competency Level Regarding Care of Children Suffering from Hemophilia: An Educational Program

Egyptian Journal of Health Care • 2021
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Publication Information
Authors Amal Gharib Sebaq, Safaa F. Deraz
Keywords Caregivers, children, competency level, educational program, haemophilia.
Journal Egyptian Journal of Health Care
Publisher Amal Gharib Sebaq, Safaa F. Deraz
Volume 12
Issue 1
Pages 193-212
publication.type Local
Paper Link Not Available
Supplementary Materials Amaal Gharieb Sabbaq_fifth.pdf
Abstract
Background: Caregivers are an instrumental partner taking active participation in
affecting the nature and direction of care process of hemophilic children. Parental
competence and success in facing difficult circumstances may increase parental
self-efficacy and serve as a protective factor against negative outcomes for children.
Aim: The aim of this study was to evaluate the effect of an educational program on
improving caregiver's competence level regarding care of children suffering from
hemophilia. Design: A quasi-experimental design was utilized in the current study.
Settings: The study was conducted at inpatient pediatric hematology units in
Benha and Nile Health Insurance Hospitals. Sample: A purposive sample of 50
caregivers (mainly mothers) accompanying their children were selected from the
above mentioned settings. Tools of data collection: Three tools were used: A
structured interviewing questionnaire sheet, mothers' reported practices and
parenting sense of competence scale. Results: There was a significant increase in
mothers' competency level after one and three months of program implementation
compared to pre-program. Conclusion: The educational program was an effective
method in improving mothers' knowledge, their reported practices, and their
competency level regarding care of children suffering from hemophilia.
Recommendation: Establish a regularly training program for mothers who have
children suffering from hemophilia and were newly diagnosed in order to improve
their competency regarding care of their children.